Matthew Rathbun is a Human Subject Research Specialist at the University of Rochester Center for Health + Technology (CHeT) in Rochester, New York. His research focuses on developing and validating disease-specific patient- and caregiver-reported outcome measures, primarily in rare and neurological disease populations. CHeT’s Outcomes Division has developed over 250 disease-specific outcome measures, which have been used in industry, academic, and foundation trials worldwide and demonstrate strong sensitivity to therapeutic change and relevance to patient populations. Matthew is passionate about ensuring that patient and caregiver voices are meaningfully integrated into the evaluation of emerging therapies.